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Knitting Distractions & Wellbeing Tip #3

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I started knitting this yesterday to take my mind off my ongoing lower backache.  The major problem I find having Secondary Lymphoedema (like many lymphies) is coping with the summer heat.  A swelling time for many frolicking in the sun but I am inside mostly keeping my limb out of the sun rays! 

‘Suggested Wellbeing Tip’

Keeping cool tips are varied and the latest one suggested to me online is to buy a dog cooling mat.  

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I recently ordered this product off ebay.uk.  A buy one get one free offer.  

‘My Wellbeing Tip #3’

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My wellbeing tip is to use Organic Aloe Vera gel (200ml by Aloe Pura Laboratories £4.70 ebay.uk – you can get after sun products too).  

It is best kept in the fridge so as extra cool when applying onto the lymphatic limb and simply switch on a fan.  

The floor fan I have is huge and I only ever use setting one out of three.   If on setting three the room becomes a mini tornado with stuff flying wildly around.  Less dramatic on one!   

Anyway, if your a lymphie or non-lymphie and want to cool off in summer indoors it is a good tip.  There are not many humid evenings in Shetland, Scotland but with the latest heatwave in the U.K it is very good to help keep the lymphatics cool!   

‘WordPress App’  

https://apps.wordpress.com/mobile/

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This is my first blog post using a mobile WordPress App’ so, hence shorter in length.  I find this app helpful if I see a grammatical mistake or needing to quickly update information.  All my photos are updated only through using a laptop computer.  My mini-review:

https://legoponics.blog/2018/07/08/wordpress-app-on-the-go

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Coming soon a few blogs on my summer so far.  Here is a photo of wild flowers taken from a recent walk in Eshaness, Shetland Islands ✍🏼👣🙂

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Tripidio Movement Systems DVD Review

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‘Tripudio’ 

In the latest Spring issue of Lymphoedema Support Network (LSN) I read up about Tripudio:

tripudio-lsn.magazine

I have never heard of Tripudio so I was curious as it focuses on the lymphatic system using gentle exercises 

I contacted Julia Williams the Co-founder of the tripudio systems to ask if I could do a review.   She kindly sent me her DVD (retailed at £15.00).  

tripudio-flow-julia-williams

Julia facilitates the teaching of Tripudio Movement Systems (TMS) across the United Kingdom.   She currently runs 3 modular one-day trainings:

Module 1 – Tripudio (lymphatic) flow, working one to one, lymphatic system, lymphoedema awareness, introduction to fascia. 

Module 2 – Moving Bones and Joints – from one-to-one to class instructor, stretching, planning a class 

Module 3 – Focus on shoulder dysfunction – fascia, scar tissue, breast cancer awareness, whole body awareness.    

Tripudio Flow is a sequence of movements that really immulate manual lymphatic drainage for the whole body –  Julia Williams Co-founder

On the 1st of June I watched up to 45 minutes of the 1 hour 35 minute of Tripudio DVD.  This covered the first five sections of the DVD:  

Introduction; Building Blocks; The Flow Sequence; The Seated Flow and Extended Flow

Introduction

The first twenty second introduction informs about copyright and that anyone using this DVD has any diagnosed medical condition to consult their doctor before embarking on a new exercise programme.  

Then a menu comes up to ‘PLAY DVD’ and ‘SECTIONS’.  I press SECTIONS and the Introduction starts with gentle music.  An image of a seagull (similar to my-legoponics & life-tinkin logo) then the garden studios of Birdport come into view.  This is all based in Dorset county.  The DVD is easy to use and if you  have missed any particular sequences it is easy to go back and replay.   

The introduction comprises of Julia talking briefly about her education and extra learning about the lymphatic system.  After this it goes to her class from the Fullers Community.  About four individuals from the same class give their individual feedback on Tripudio classes and the benefits they have all encountered.  In summary:

Tripudio doesn’t just help those with lymphoedema but also parkinsons disease; breast cancer with lymphoedema; scar tissue problems; balance and mobility.  It helps anyone of any age who have problems with M.E; fibromyalgia; arthritis and more.   All tripudio workouts are designed for rehabilitation or those needing a gentle work out.  

In terms of my own exercise routine I can see me adding certain sequences into my current exercises.  See previous blog on my theraband exercises:  https://legoponics.blog/2018/04/19/the-awesome-theraband

Building Blocks of Tripudio Flow

In the lymphatic system there are deep lymph nodes in front of the body and the spine.  In order to access them deep breathing exercises help the lymphatics become less stagnant.  

The main two movements are ‘Breath of Joy’ and the‘Butterfly Breath’. Exercises can be done standing or sitting in a chair depending on your individual medical condition.  

‘Contact Information’

CLASSES       HOME DVD      POSTER     TRAINING

http://www.tripudiomovement.co.uk  

email – info@tripudiomovement.co.uk

07734511287            01308538112

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The Awesome Theraband

Wellbeing Tip #1 – ‘Dry Brushing’ & ‘Gravity is your friend’ – see blog link:

https://legoponics.blog/2018/03/18/lymphie-conversations-wellbeing-tips

Wellbeing Tip #2 – ‘Theraband – Resistance Exercise’

A theraband are latex bands or tubes that are used for physical therapy and light strength training exercises.  They are also commonly used by athletes but also people who are looking for a low-impact strength training workout

https://www.wikihow.com/Use-a-Theraband.  

Since mid-February I have used this method of resistance exercise to help with a tennis elbow and strengthening the lower leg calf muscles.   The tennis elbow is mending slowly and the reason for the lower calf exercises are to help avoid limping.  Any limping isn’t good for the posture in the long term.   

My long term goal is to walk more effectively despite my lymphoedema in my whole leg  

my-legoponics & life-tinkin 

I have lived with lymphoedema for four years now and the important thing is to do something active every day.  The purpose being to improve on flexibility and mobility and for me to get from A to B without using a walking stick.  All exercise helps lift your mood too.    

G R E A T   F O R   U P P E R   L I M B   E X E R C I S E S 

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L O W E R  C A L F – E X E R C I S E S  

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I bought a couple of therabands online as suggested by my physiotherapist.  These therabands are simple to use and very effective to help strengthen muscles and to help lose weight too.   

Pin Interest board for specific usage of the Theraband

https://www.pinterest.co.uk/mylegoponicsandlifetinkin/legoponicsblog-lymphoedema-exercises-tips/

This is a great wellbeing tip for all types of individuals to do at home.  A gentle way to help tone, lose weight and strengthen your core and limbs effectively.  Pilates greatly use this method of resistance exercise.    

‘Happy Feet’

On a personal level the theraband resistance exercises have helped with a specific problem caused by wearing open toed compression stockings.  The next picture you can see the difference between open and closed compression garments.

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The opened toes are a long term favourite of mine as they are great to wear with sandals in the summer time.  However, personally speaking the open toe garments can help build up lymph fluid directly under the toes making it uncomfortable to walk about.  In seeing a qualified physiotherapist my woes were gone in one day!     

I was amazed that a simple calf exercise made a dramatic difference and very quickly too!  I went from limping to walking normally (as i can) in one day!  

I still get bad days where I can’t walk far but I am improving as the theraband exercises increase.  I am very grateful to my current physiotherapist based in Lerwick, Shetland.   Her service has helped me regain my confidence to be more mobile and to have use of my arm too. All images see Welcome to…page. 

Thank you for reading (:

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Lymphie conversations and wellbeing tips

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It is a sunny and crisp Sunday morning here in Shetland. The blackbirds and little sparrows are chirping loudly from a neighbours bird feeder.  The odd squawk from a distant seagull

‘Legoponix’

Since I started this blog a week ago conversations about the lymphatics in general was interesting.  Apart from the few friendly enquiries and supportive chats one conversation stuck out from the rest.  I asked the person in question for their permission to blog.  They preferred anonymity, so I shall refer to them as Robin.

In a light-hearted and humorous way Robin texted

I was born special’ and, quote having double Legoponix in both legs

 (Awesome typo 😊 so used it as heading).  It was news to me and I never guess Robin had this condition at all.  Robin agreed with the quote from my first blog, ‘…a ‘common delayed diagnosis’ under the heading ofDiagnosis’.

Robin points out,

I was undiagnosed for ages and working self-employed on my feet for up to 14 hours a day…I got super chunky’.  Robin goes onto explain, ‘the NHS investigated but it was Macmillan nurses that picked up my case

 Instead of primary or secondary lymphoedema Robin had a very late diagnosis of Primary Lipoedema. Links: http://www.lipoedema.co.uk/

Briefly, primary lipoedema is a condition that you are born with and it can run in the family.  It can miss a generation but can be passed on by genetics.  Lipoedema can be easily overlooked and commonly individuals are forever dieting and watching their weight but it never goes.  Getting an early diagnosis and correct treatment is important.

After Robin was diagnosed,

I then had two rounds of cellulitis’.  Upon asking me if I ever encountered it I confirmed never.  Robin answered, ‘you haven’t lived it’s a barrel of laughs!

I can’t imagine and hope to never encounter it but the likelihood is a higher percentage than non-lymphies.  Oh well, my attitude is all you can do is be prepared.  In both lymphie conditions the skin gets tighter due to swelling of limb/s and can cause the deep layers of skin to come out in painful cellulitis if not properly maintained.

I can’t imagine what it is like but after reading some recent posts from various social media groups it is plain nasty.  Flare ups look painful and from one post I could see an individual was hospitalized.  The LSN Network provides a helpful leaflet called ‘Management of Cellulitis in Lymphoedema’.  If you sign up as a member you can order specific leaflets and DVD’s for your own specific requirements.  I keep my leaflet in storage for now hidden from sight.

Then I got it…

https://legoponics.blog/2018/05/07/the-cellulitis-bubble

‘Wellbeing tip: Skin Care’

In the last four years of having Lymphoedema I find dry brushing is great.  I fully recommend it if you are lymphie or non-lymphie.  The main benefits are;

  • reduces cellulite (very awesome)

  • improves circulation

  • releases toxins

  • brightens skin

  • improves digestion

  • lastly soothes the mind

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In the early stages of brushing I don’t agree with the last part of the list, ‘soothes the mind’.  I remember a few expletives at first and how I persevere to get through it.  

Usually, I am not that hot on health kicks but, this dry brushing really is the deal.  Once you get through a few brushing routines it is an added bonus to any self-care routine

Remember to buy a good quality dry brush specific for body brushing or else you shall waste time and money on something that doesn’t do the job.

FACT:  The skin organ is the largest and the amount of skin cells we lose in a day is staggering. In one year, you’ll shed more than 8 pounds (3.6 kilograms) of dead skin (from howstuffworks.com)

  • To dry brush properly is to use specific brush stroke movements as seen in the image below.

Dry brushing image

‘A ‘wee’ wellbeing tip’

The last *wee tip is from Robin who advised me to raise my bed (feet end of course) by 4-6 inches.

It helps with limb swelling. Quote, ‘you’ll be amazed the next morning and lastly, ‘remember gravity is your friend!’

Cheers Robin (:

*Wee is used alot in Scotland it means ‘little’ so don’t be offended it just Scottish slang.

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lymphie-conversations-and-wellbeing-tips