It is a sunny and crisp Sunday morning here in Shetland. The blackbirds and little sparrows are chirping loudly from a neighbours bird feeder. The odd squawk from a distant seagull
Since I started this blog a week ago conversations about the lymphatics in general was interesting. Apart from the few friendly enquiries and supportive chats one conversation stuck out from the rest. I asked the person in question for their permission to blog. They preferred anonymity, so I shall refer to them as Robin.
In a light-hearted and humorous way Robin texted
I wasborn special’ and, quote having double Legoponix in both legs
(Awesome typo 😊 so used it as heading). It was news to me and I never guess Robin had this condition at all. Robin agreed with the quote from my first blog, ‘…a ‘common delayed diagnosis’ under the heading of ‘Diagnosis’.
Robin points out,
I was undiagnosed for ages and working self-employed on my feet for up to 14 hours a day…I got super chunky’. Robin goes onto explain, ‘the NHS investigated but it was Macmillan nurses that picked up my case
Briefly, primary lipoedema is a condition that you are born with and it can run in the family. It can miss a generation but can be passed on by genetics. Lipoedema can be easily overlooked and commonly individuals are forever dieting and watching their weight but it never goes. Getting an early diagnosis and correct treatment is important.
After Robin was diagnosed,
I then had two rounds of cellulitis’. Upon asking me if I ever encountered it I confirmed never. Robin answered, ‘you haven’t lived it’s a barrel of laughs!
I can’t imagine and hope to never encounter it but the likelihood is a higher percentage than non-lymphies. Oh well, my attitude is all you can do is be prepared. In both lymphie conditions the skin gets tighter due to swelling of limb/s and can cause the deep layers of skin to come out in painful cellulitis if not properly maintained.
I can’t imagine what it is like but after reading some recent posts from various social media groups it is plain nasty. Flare ups look painful and from one post I could see an individual was hospitalized. The LSN Network provides a helpful leaflet called ‘Management of Cellulitis in Lymphoedema’. If you sign up as a member you can order specific leaflets and DVD’s for your own specific requirements. I keep my leaflet in storage for now hidden from sight.